Filed Under (Cochlear Implants, Year One (Daniel)) by Kel on 06-02-2009

Danny’s activation is in a little more than a week, and he’s a little more than a week out from surgery. He has been having a phenomenal recovery, other than a virus he picked up and caused a short fever (and plenty of worry). It was something shared by John and some of the kids and teachers at daycare, and lasted barely at all, so I am celebrating its leave!

I find myself becoming increasingly emotional as activation day comes. There is a lot going on right now! Of course, it is a big day we are coming up on; I know to keep my expectations of the actual activation low, as there is no way to know how he will respond, but it is an exciting day in our journey all the same! To think, after that day, he will hear when I talk to him, hear the stories and the songs… OK, so in the beginning all he will hear will probably be beeping, but he’ll (hopefully) get the idea quickly enough. Wow! I can’t wait.

We’re also coming up on the anniversaries of a lot of craziness. I realized the other day that is has been almost exactly one year since I came down with CMV and, unbeknownst to me, our lives changed so dramatically. Activation day, February 16, is the same date as Nat’s baby shower, when I was visiting her and we were so happy and excited and clueless to the bizarre and tragic fates awaiting our babies. Then, of course, will come the second week of March and the boys’ birthdays. There are a million different emotions all lumped together in one there.

Amazing, how far we have come, what all we have learned in just one year… and what all Danny will begin to learn in just one week.




karen on 6 February, 2009 at 9:29 pm #

Hiya Kel, I know the angst that you must be going through, but I know in my heart that Danny will continue to be the great little guy that his is right now, this to me is sort of a rebirth for him, his world is about to become real,not that it was not significant before , but noises and sounds are something so foreign to him, now he will grow. He will explore, he will follow, he will learn and feel more, and be more.In his silent little world, it was a vast different place that you and I are part of, but we learned so much from him, now you can take him by the hand and introduce him to his new world, and what fun you will have watching him experience everything all over again. It will be ok, it will be more than ok, it will be wonderful and emotional, and like I said to you all those months ago, what a journey he will take you on. I think I was right.Smile , laugh, cry, hold him close to your heart,watch in amazement this child of yours, he is truly a gift. I love you, and please take care, love forever, mom

Hetha on 7 February, 2009 at 2:27 pm #

Good grief, your mom’s comment made me teary eyed. It’s a very exciting time and what’s great about this particular journey is the fact that the wonder of it all just keeps unraveling through time. You’ll get used to the lifestyle and the new hearing, and out of nowhere he’ll surprise you. We’re nearly 3 years into this and we are still amazed by it all. Blessings to you all!

(Travis) Demosthenes from WD on 8 February, 2009 at 1:14 am #

Hi there :) You may not know me but John knows me from WD and RL of course. I just want to congrats on your son getting his new cochlear implant. I assume its Freedom model? I have a cochlear implant too and its 22 channels though. I had surgery in 1990 when i was 9 years old. It was very smart choice for you to get it for your son at early age. Because baby/toddlers have the abilities to learn verbal and listening skill faster than older people. I still lacks in speech and listening skills but my speech improves daily but not so much though. I wish i had my cochlear implant earlier but I think FDA didnt approve it until 1988 (I think) so obvious CI was new around that time.

Here’s a sad part…after i got back from New Jersey.. i realized that i lost my cochlear implant. Its 6,000 dollars little device. Its easy to lose it. So be very careful with it. I would suggest you to use clear line like fishing line and tie it to cochlear implant and pin it to his shirt so that way you wont have to worry about it! I think Cochlea have some accessories to help that. I am not sure though.

Good luck with activation and it should go well. I am sure he would feel shocked feel something and realize that he’s hearing something. I remembered my first activation and it was so weird! I got used to it eventually :)

Anyways, if you ever need to talk to me about cochlear implant issues or whatever.. you know where to get ahold of me. I am Demosthenes find me on WD anytime!

Congrats again!

Heather on 9 February, 2009 at 3:57 pm #

I am so excited for you and Danny.

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