I'm Kel, a Canuck turned Yankee, avid reader, a bit of a gamer, and a mother to 3 fabulous boys. Eric, a fun loving 1st grader, Danny, our CMV miracle, and baby Andrew all share in the adventures chronicled here! Together, we make our way through life, dealing with deafness, pervasive developmental delays, plenty of skinned knees, dare-devil attitudes, a little sass, and a lot of laughter.
- Mar 08 - Born, CMV diagnosed, Newborn hearing screen passed
- Apr 08 - Bacterial infection
- May 08 - Failed ABR
- Aug 08 - First hearing aids
- Sep 08 - CI Recommended
- Oct 08 - MRI and CT scan
- Jan 09 - Bilateral surgery
- Feb 16/09 - Activation!
- Sep 09 - Babbling "g"
- Oct 09 - Babbling "mamama"
- Jan 10 - Babbling "bababa"
- Feb 10 - Receptive language explosion
- Apr 10 - First word! "Uh oh"
I’ve got a sleeping baby being dead weight on one arm, so please forgive any typos!
Keeping in mind that you can’t have huge expectations for an initial stim, today was beautiful. I’ve seen him react a small handful of times at home (OK … twice) but the first days with a implant you don’t see major things, his brain is still trying to figure out what is going on. I am amazed, though. He had definite reactions to some louder stuff, and got quite still and wide eyed, looking around a little, for speech. Speech! My deaf baby! (Granted, this was loud speech with them turned quite up – he is not hearing normal speech quite yet. That will come soon, but the last thing we want is to overdo it and scare him.) Unlike the hearing aids, while there still isn’t a lot, I could see it this time: the start of sound.
We also turned both on today! We will tweak the programs tomorrow. He has a harness that he wears them in, and he was great leaving them, and that, alone.
A huge day, with little signs. I am so glad, so thankful.
I don’t have a pic of him wearing them yet, we were busy talking and listening and playing. But here is the best part of our 1.25 hour video…
Comments
Congratulations, how exciting! Now the journey really begins…
No words…just tears of joy. Thanks for sharing. Love to you all, mom
Wow! He really reacted! That’s so cool 
We didn’t see any reaction with Ethan until his second mapping session, several weeks after initial stimulation. Way to go Daniel! He’s a cutie pie.
I have tears. I’m so happy for you all and can’t wait to hear more updates on Danny’s hearing journey!
Congratulations! What an exciting day.
Oh, I am so excited for you and Danny!!!
