Filed Under (Year One (Daniel)) by Kel on 17-03-2009

Yep, that’s Danny – the big O-N-E. His birthday was almost a week ago already, and he loved it so much he was out cold by 6pm to sleep for a good 12 hours. He partied hard though, including a cupcake that he had absolutely zero interest in, and definitely needed the rest! Unfortunately, since then, he decided to get sick over the weekend; I’m glad to say he’s over it now, knock on wood, but he was throwing up for a weekend which is oh so enjoyable.

Gosh, how far he has come in a year. He’s doing things some CMV babies never do. He’s almost crawling, and definitely moving deliberately all over the room in a strange combination of rolls, army crawls, and the occasional lunge forward from hands and knees. He seems to be getting brighter every day, trying to figure things out and get them to go his way. He’s hearing – hearing! Words can’t describe the feeling.

Early AVT is proving not as hard as I’d feared. Of course, maybe we’re doing it wrong – ha! But it seems so natural, just talking to him and feeding him language. Of course, right now is the “easy” part, as he adjusted and learned what sound is. It’s amazing the discoveries I have made, personally, though while helping him discover sound. Stop for a moment and listen, just listen. What do you hear? A year ago, I would have said nothing, just the radio. Today? I hear the radio, I hear the hum of the lights overhead, the TV in the lunch room, the hum of the machinery on the roof…there are so many sounds everywhere that I’m becoming aware of.

And oh, the returns. Twice this week my throat caught. Once, Danny turned to a rather quiet toy of his when his daddy snuck up behind him and sounded it behind his head. And then the parade… See, shortly after Danny was diagnosed as deaf, we went to a parade. Eric loved it. Danny slept in his carrier the whole time, and I kept watching him as the music played and the car horns sounded, willing him to react. There was, of course, nothing. This weekend, we went to a St. Patrick’s Day parade, and shortly upon arrival Danny decided to fall asleep in his stroller. Well, his implants were on, and I believe in letting sleeping babies lie, so they stayed on instead of fighting with his hat, coat, etc to get them off. I didn’t even really think about it much, I was watching with Eric, but I couldn’t help noticing Danny startle a little in his sleep when the first horn blew. Oh gosh, I nearly burst into tears right there.

Of course, CMV sucks, and it isn’t all perfection. We’re talking possibly adding OT in a few months to his rounds of therapies; his fine motor skills have the same delay his gross ones do. It isn’t reason to be concerned yet, but he doesn’t tolerate any table food, it’s still all stage 2 and 3 purees. (I blame myself for that one, haha – all my saying he was eating so well there was no way he’s develop eating issues, so now he just wants to fake me out a little.) We aren’t sure yet, but his PT mentioned his feet turned in a little and she was going to keep an eye on him to see if he might not need inserts for his shoes. Really though, those are little things. He is doing so, so well.

Happy birthday, munchkin.

Oh, and the stats – he is darn near 20 pounds, 29.25″ tall, and a head circumference of 18 inches. His height and weight are both 30-35th percentile, gaining more ground on the charts, beautiful things! We also saw his ENT this week and he said everything looks great. There was a bit of fluid behind his ear drums, but he’s got a cold, and it wasn’t infected…so he is not really concerned at this point. We’ll go back in the summer though to take a look and see if we want to put his tubes back in.

     

 

Comments

Heather on 17 March, 2009 at 4:37 pm #

Happy birthday, Danny!


Drew's Mom on 17 March, 2009 at 5:15 pm #

Happy Birthday!

It’s amazing how AV becomes a part of who you are!


Tammy on 17 March, 2009 at 7:05 pm #

Happy birthday Danny!!!! It’s amazing that our babies are 1 years old and on their way to hearing and speaking! Amazing! I love the whole AV world! It’s become such a way of life for us and it just flows!


Lucas'Mommy on 17 March, 2009 at 7:06 pm #

Happy Birthday, Danny@


Karen on 18 March, 2009 at 3:29 pm #

It looks like Danny had a great birthday, and St. Patricks day looked like a ton of fun. Thanks for all the great new pictures Kel. Happy Spring! Love, mom


Vishal on 7 December, 2015 at 2:17 pm #

NoDak in the news…Williston, ND has been booming for 3-4 years now. I have a frenid who is a geoligist there now, making an absurd amount of money, (at least it’s absurd to me and I mean that in a good way) With the surge of people, my only concern is how many liberal, hippie, pinkos, GORP eaters, and basic fucktards are coming into our state. But after careful review, these type of folks don’t like oil. So I think we are safe.


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